I’m dealing with this stupid medical issue that I haven’t blogged much about. (Ok ok, I know I haven’t been blogging much about anything recently- but honestly – Im trying to do better! )

My hematologist called me the other night and told me my Haptogoblin numbers are really low. But since my Reticulocyte count is normal… she’s not sure what is going on. All my other liver enzymes are normal. I am very frustrated. I have an appointment with an internist in a couple weeks but I am going to share my medical info in case some googling stranger or doctor has some sense of what this could be. I’ve been dealing with this for months now and still don’t feel like Im any closer to understanding what the problem is.

Here are the numbers:

Urine
• UA Urobilinogen 2.0 (< .2 is the reference range) Billirubin in the urine
• UA RBC 5H (<=2) RBC in the urine
• UA CA Ox Crystals: Moderate

Blood
• Bilirubin Total 2.9 H (.1 -1.5)
• Bilirubin Direct .4 H (0-.3)
• RBC 3.37 L (3.8-5.2)
• Hgb 10.9 (11.6-15.5)
• Hct 33.1 (35.0-46)
• RDW 16.2H (11-14.5)
• Haptoglobin low less than 6 (reference range is normal is above six)
• Reticulocyte Count Normal

Symptoms:
• Cold all the time
• Short of breath
• Incredible Fatigue
• I have lost weight but I am hoping that is just because of working out
• Right Flank Pain (comes and goes) (thought was a kidney stone but contrast CT was clear)
• Flank pain started in December – it’s worst after I run and has moved “lower”
• Some pressure/pain while urinating sometimes. Not UTI kind of pain but almost like a “vacuum” kind of pain. It’s not pleasant but it’s sporadic.

Urologist says no kidney stone. Im actually not convinced it’s not a stone. Hematologist thinks that the anemia is secondary and being caused by inflammation somewhere in the body – she thinks a kidney stone. Now Im going to go to yet ANOTHER doctor to find out what THEY think.

So… any ideas?

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